main event

conference

Milano, Italy
PALAZZO PIRELLI , Sala Gonfalone

May 9, 2019

Big Data,
Electronic Health Records and Health Governance

Big Data,  Electronic Health Records  and Health Governance
Big Data,  Electronic Health Records  and Health Governance

Regions4PerMed is an H2020 project whose focus is the coordination of regional policies and innovation programmes in Personalised Health and Medicines to accelerate its deployment for citizens and patients. The project has the overarching goal to align strategies and financial instruments, identify key investment areas and release a strategic European agenda in order to reinforce the cooperation between H2020 and ESIF on Personalised health and Medicines aspects, strengthen industrial specialisation areas in Europe, allow Personalised Health to flourish as an Emerging Industry and enable interregional joint investment in the field.
The Project creates an arena for discussion, best practices exchange and policy benchmarking between regional authorities and innovation stakeholders in Personalised Health.
Regions4PerMed will be focusing on five Key thematic areas: medical big data, connected health, health industry, innovation flow in the healthcare and socio economic aspects.

The Conference of the First Key Thematic Area (KA1) explores the theme of Big Data, Electronic health records and health governance and aims to:

  1. Support the creation of a Data Ecosystem and the data and genomic empowerment for Personalised Medicine and Health in Regions and in Europe;
  2. Increase the knowledge and realise an assessment of solid models for Big Data in healthcare;
  3. Use health related Big Data as a strategic investment that could drive industrial competitiveness;
  4. Analyze and assess implementable models of biobank networks able to support the transition towards health and care data based systems.
#Regions4PerMed #BigData4Regions #PersonalisedMedicine

Programme

Thursday May 9th, 2019

08:15

Registration

08:45

Marina Gerini (Fondazione Regionale per la Ricerca Biomedica)
Host Greetings

09:00

Gianni D’Errico, Paola Cormio (Toscana Life Sciences Foundation)
Regions4permed: the project, aim of the conference

09:15

Luca Merlino (Lombardy Region)
Personalised Health Governance from the perspective of a Region

09:30 - 11:05

Keynote Session: Setting the scene
Chair: Sergio Abrignani, INGM (National Institute of Molecular Genetics) and University of Milan

09:30

Jana Makedonska (European Commission)
The Digital Transformation of Health and Care and the European 1 Million Genomes Initiative

09:50

Elio Borgonovi (Bocconi University, CERGAS)
The role and value of regions for the healthcare of tomorrow

10:10

Sabrina Montante (National Institute of Health, Italy)
Innovation and Healthcare systems: TO REACH Project

10:30

Discussion

10:45

Coffee break

11:05 - 12:40

SESSION I: Clinical decision support, data sharing, patients engagement
Chair: Nick Guldemond, Erasmus School of Health Policy & Management, PANAXEA

11:05

Jan Korbel (European Molecular Biology Laboratory, Germany)
Data integration and interoperability for enhanced system medicine

11:25

Riccardo Bellazzi (Università degli Studi di Pavia)
Predictive data mining in clinical medicine: current issues and guidelines

11:45

Giovanni Apolone (Istituto Nazionale dei Tumori)
Big data as a driver for clinical Decision Support Systems. The STARGATE INT Proposal

12:05

Antonio Barone (LISPA, Lombardy Informatics)
Regional innovation: the taking care approach

12:25

Discussion

12:40 - 14:30

SESSION II: Research Data management
Chair: Denis Horgan, EAPM

12:40

Jana Makedonska (European Commission)
HRIC – Health Research and Innovation Cloud

13:00

Lisa Licitra (Fondazione IRCCS Istituto Nazionale Tumori)
Pilot project in oncology with big data

13:20

Discussion

13:30

Lunch

14:30 - 16:00

SESSION III: Data and Patients
Chair: Christos Lionis, University of Crete

14:30

Mauro Turrini (University of Nantes)
What can algorithms do? Social issues and occasions of data-driven devices in health care

14:50

Marco Greco (European Patients’ forum)
Does Data Save Lives ? The patient’s perspective

15:10

Martin Sedlmayr (TUD Institute for Medical Informatics and Biometry)
Towards Data Sharing in the German Medical Informatics Initiative

15:30

Discussion

15:45

Coffee Break

16:00-17:30

SESSION IV: Health data management: biobanks and healthcare databases
Chair: Giovanni Apolone, Istituto Nazionale dei Tumori

16:00

Eleni Salamaxani (Genomics England)
Value of genomics data for science and medicine

16:20

Giovanni Corrao (Bicocca University)
Real world data in healthcare

16:40

Mary Wang (Fondazione Telethon)
Network of rare genetic biobanks

17:00

Discussion

17:15

Fondazione Regionale per la Ricerca Biomedica and Toscana Life Sciences Foundation
Final remarks